Arthritis Care Scotland - General http://www.arthritiscarescotland.org/taxonomy/term/9 en Where next with PsA? http://www.arthritiscarescotland.org/forum/where-next-psa <div id="comment-wrapper"></div><div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even" property="content:encoded"><p>Just wondering if anyone else has any knowledge of whats " likely" to be my next treatment for Psoriatic Arthritis. Been diagnosed now for about 20 months, its in pretty well every joint from head to feet to different degrees from just stiff to constant pain, though I do not get the impression I am regarded a severe case. I have 3 visibly swollen joints on my hands and noticed some new swelling recently at the ends of my fingers now ( characteristic of PsA).<br /> I have been on MTX for 16 months ( can't say I notice any improvement from being on it, though its cleared up my very trivial Psoriasis) and have tried Leflunamide for 6 months and Sulfasalazine for coming up to 6 months). The Lef. did nothing of note though the Sulfa did appear to abate things noticeably for 3 weeks in summer ( I am crediting it with this I have no way of really being sure) but its since got worse again.<br /> I am due to see the rheumy in 3 weeks and was wondering if anyone has any knowledge of what is likely to be tried next. My hope is Biologics, and in fact one of the rheumy nurses thought I should be trying them in the Summer but was over ruled by the rheumy ( apparently I "don't meet the criteria"). I feel I am wasting my time with any other stuff, most things I have heard from the one other sufferer I know, and from rheumatology stuff I read on Twitter and through my own extensive research seems to suggest the only really effective drugs ( and even then its hit and miss with no guarantee's) are three of the biologics- Humira, Enbrel and Remecade. My friend eventually got Remecade and it went away 8 years ago and he has remained in remission a further 4 years since stopping it.. I look at the well known golfer Phil Mickelson, winner of the Open this year- he was put on Enbrel, after<strong> 3 months</strong> of MTX and look what he can do! I can barely walk round the block.<br /> Anyone here know? I feel I am being strung along following the flow chart on the SIGN guidelines, they seem to suggest Biologics next BUT if I "don't meet the criteria" which seem very subjective, it seems my hopes of getting some releif/remission are going to be slammed on cost grounds not clinical benefit.</p> </div></div></div> Thu, 24 Oct 2013 14:29:08 +0000 theunfamousfly 2719 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/where-next-psa#comments Would You like a SPA Retreat that focused on your condition and wellbeing? http://www.arthritiscarescotland.org/forum/would-you-spa-retreat-focused-your-condition-and-wellbeing <div id="comment-wrapper"></div><div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even" property="content:encoded"><p>Hi Everyone</p> <p>I have a new idea for a possible Arthritis Care Scotland service and I wondered if this would be something you wouold be interested in?  The idea is for a SPA Retreat that was specifically designed for people who live with arthritis and other long term conditions.</p> <p> </p> <p>You can let me know if my idea is viable by filling in my confidential survey:</p> <p><a href="https://www.surveymonkey.com/s/G6S8YVV">https://www.surveymonkey.com/s/G6S8YVV</a></p> <p>I would appreciate this! Melanie Arthritis Care </p> </div></div></div> Thu, 24 Oct 2013 13:05:58 +0000 mel 2723 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/would-you-spa-retreat-focused-your-condition-and-wellbeing#comments Cold weather is setting in - How are you planning on staying warm this winter http://www.arthritiscarescotland.org/forum/cold-weather-setting-how-are-you-planning-staying-warm-winter <div id="comment-wrapper"></div><div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even" property="content:encoded"><p>Hello everyone,<br /> So it's that time of year again when the frost settles in the air and you need to look out the winter jackets/hats/scarfs and gloves.<br /> I was wondering if anyone had any tips on how to keep warm this winter?<br /> Personally I will be buying some popular designer Wellies to replace my cheap ones and getting some super thick knee high socks.<br /> I think i'll be making a lot of homemade soup too as its a good way to warm up after work.<br /> Deni</p> </div></div></div> Mon, 14 Oct 2013 17:47:45 +0000 Deni 2717 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/cold-weather-setting-how-are-you-planning-staying-warm-winter#comments How does the Weather affect your arthritis? http://www.arthritiscarescotland.org/forum/how-does-weather-affect-your-arthritis <div id="comment-wrapper"></div><div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even" property="content:encoded"><p>As the weather has been changing, with the arrival of the autumn season, I feel myself getting a wee bit slower - is this the weather or is it the darker nights - or am I just getting old now I'm 35?</p> <p> </p> <p>Anyone else with arthritis feel like this?</p> <p> </p> <p> </p> </div></div></div> Mon, 14 Oct 2013 15:16:49 +0000 mel 2647 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/how-does-weather-affect-your-arthritis#comments Feeling like a robot that's run out of oil and batteries in the mornings? http://www.arthritiscarescotland.org/forum/feeling-robot-thats-run-out-oil-and-batteries-mornings <div id="comment-wrapper"></div><div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even" property="content:encoded"><p>Hi</p> <p> </p> <p>I just wanted to share how I feel in the mornings and ask if anyone else out there feels the same and what you do to try and make yourself feel a bit better - or at least feel like you can get out of bed and start thinking about a coffee in the mornings!</p> <p> </p> <p>I wake up feeling as though I've just fallen asleep - so tired and my back and other big joints feel like they are made out of stone :( This morning, an hour after waking up, I've just managed to crawl out of bed and make a very slow cup of coffee, while putting on classic fm (very different from my usual 70's station!) to try and make me feel better......</p> <p>Do you feel like this and what tips do you have to try and help? I'd really appreciate it!</p> </div></div></div> Thu, 03 Oct 2013 13:34:24 +0000 mel 2665 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/feeling-robot-thats-run-out-oil-and-batteries-mornings#comments What Medication Works for You? http://www.arthritiscarescotland.org/forum/what-medication-works-you <div id="comment-wrapper"></div><div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even" property="content:encoded"><p>Hi</p> <p>I've been on Adulimumab for 4 weeks and wondered if anyone else has had real health benefits from this treatment?</p> <p>Thank You :)</p> </div></div></div> Thu, 12 Sep 2013 13:17:29 +0000 mel 2620 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/what-medication-works-you#comments Are cutbacks affecting health services in your area? http://www.arthritiscarescotland.org/forum/are-cutbacks-affecting-health-services-your-area <div id="comment-wrapper"></div> Tue, 10 Sep 2013 15:09:41 +0000 admin 2510 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/are-cutbacks-affecting-health-services-your-area#comments Are waiting times - for GP, Hospital, or other appointments or procedures - getting longer or shorter in your area? http://www.arthritiscarescotland.org/forum/are-waiting-times-gp-hospital-or-other-appointments-or-procedures-getting-longer-or-shorter <div id="comment-wrapper"></div> Mon, 09 Sep 2013 19:59:10 +0000 admin 2511 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/are-waiting-times-gp-hospital-or-other-appointments-or-procedures-getting-longer-or-shorter#comments Do you receive DLA (PIP)? What do you think of the government changes to this benefit? http://www.arthritiscarescotland.org/forum/do-you-receive-dla-pip-what-do-you-think-government-changes-benefit <div id="comment-wrapper"></div> Mon, 29 Jul 2013 10:56:46 +0000 admin 28 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/do-you-receive-dla-pip-what-do-you-think-government-changes-benefit#comments Do you take any vitamins or supplements for your arthritis? Do they help you? http://www.arthritiscarescotland.org/forum/do-you-take-any-vitamins-or-supplements-your-arthritis-do-they-help-you <div id="comment-wrapper"></div> Mon, 29 Jul 2013 10:56:17 +0000 admin 339 at http://www.arthritiscarescotland.org http://www.arthritiscarescotland.org/forum/do-you-take-any-vitamins-or-supplements-your-arthritis-do-they-help-you#comments